DURING THE past six months First National Murwillumbah has been donating $200 from every property they have sold to the charity DEBRA.
The First National team have managed to raise an amazing $10,000 throughout the past year and on Thursday, January 18, they presented DEBRA representative Simone Baird with the cheque.
DEBRA Australia is a not-for-profit volunteer based organisation that does not receive any direct Government funding and works tirelessly to support those living with a group of rare skin blistering diseases called Epidermolysis Bullosa (EB).
DEBRA Australia assists in improving the lives of children and adults living with EB, the debilitating and sometimes fatal condition, by providing necessary support services, medical supplies, aids and equipment, support services, assistance with transition to independent living and research focusing on different aspects of EB.
Simone travelled all the way from Melbourne, Victoria, to accept the cheque and shared her heartbreaking story with the First National Murwillumbah team.
Simone’s daughter was a sufferer of EB and sadly weeks before Christmas she lost her daughter at the young age of 17.
Simone has been a member of DEBRA helping other families like her own for the past 15 years.
“They do an amazing job supporting these families and without their support so many of these families would be having a much worse time then they already are,” First National Murwillumbah Principal Scott Reading said.
“The $10,000 raised by First National will be going towards giving the mums of EB sufferers a much-deserved weekend retreat in Byron Bay.
“To look after a child with EB is a 24/7 job and some of these mums haven’t had a night off in many years.
“This weekend away may not seem like much to many of us but for these mums it will be like winning the lottery.”
The team would also like to encourage others to donate to DEBRA by visiting their website: www.debra.org.au
