THE CUDGEN Leagues Club will host “A Day for Jett” on Saturday, September 23, to help give a local youngster and his family a big boost as Jett battles a rare medical condition.
Jett’s parents are Justin and Lisa Brinsmead, who along with his younger brother Zac, are also in the process of repairing their Chinderah home following the Tweed flood.
At present, Jett attends Cudgen Public School and is in Year 6.
Jett was diagnosed with Perthes disease when he was six years old, a rare childhood condition that affects the hip.
It occurs when the blood supply to the rounded head of the femur (thighbone) is temporarily disrupted and without an adequate blood supply the bone cells die, a process called avascular necrosis.
Jett was unable to play sport or run around like normal kids his age. He endured excruciating pain and discomfort in his left leg before having a plate with pins inserted in his hip. He was given the all clear in December 2015 and was finally able to resume normal activities.
“All he wanted to do was to have his own birthday party where he could run and play footy with his mates and his younger brother Zac,” his mother, Lisa, said.
On July 19 this year, Jett again woke up unable to walk or stand but this time the pain was in his right hip.
“We knew the disease had returned but this time with a vengeance,” she said.
“Jett is facing a long battle confined to a wheelchair until the disease runs its course, a time frame which is unknown at this stage. We are told that because he is now older, surgery will only be considered as a last resort.”
“Jett’s immediate future will consist of countless physiotherapy and hydrotherapy visits.
“Painful massages are essential to keep the circulation and blood flow to the area.”
The family is also facing the expense of costly medications and natural therapies that are required to manage his pain and help his cells repair faster.
“As young parents we are heartbroken that our little man is facing this battle again, particularly as he starts high school next year. It is devastating and a very anxious time for Jett.”
The fundraiser will start from 1pm at the Cudgen League Club with entertainment provided by Matt Buggy, Carley Veal and Sophia Fletcher upstairs and a jumping castle, fairy floss and snow cones for the kids.
More information can be found on the Facebook event page “A Day For Jett” and the associated GoFundMe site. Or you can call Jennifer on 0418 185 568.
